Yesterday was my trip to Hershey Medical in Hershey PA... and the only good that came from the trip was that the air smelled like Chocolate...
The Doctors were very helpful and kind and went over everything with a fine tooth comb (they discovered a brand new heart murmur... gee, I love souvenirs!) and one by one all treatment options were scratched off the board for one reason or another until we were left with a blank board.
Fact is... there is no treatment for me other than the diet that I already follow and maybe acupuncture for pain.
The Doctors were upset that I was not diagnosed earlier... had I been diagnosed before it got to this point there might have been a few treatment options left available for me to try but with how things stand now there is nothing... sighs.
So... where do I go from here?
Well, if a Clinical Trail ever begins for an injection-able medication (in the way insulin is injected) I will be entered in that study.
Other than that I am just going to continue doing what I have been doing... there will be no surgeries to fix my hernia or replace my knee or amputate my foot because they cannot do the surgeries when I cannot take any of the heart medications that I need so I guess that I can come to grips with that.
I will continue my Gastroparesis Awareness Advocating with a vengeance... if I have my wish then no one in the future will ever be in my situation again because their Physicians will know the signs for Gastric Motility disorders and will know how to test for them before they become untreatable and will also know how to recommend the proper diet and nutrition to make their patients lives more comfortable.
I am so sorry to hear the doctors could not offer you anything that would make your life better. But it must have been nice to have doctors validate that there is something physically wrong with you. The Medical Community has failed you in so many ways. I hope it never happens to another person.
ReplyDeleteJane